Planet Skokie

Angie suggested we take Jude swimming. Since Angie is Jude’s
occupational therapist, I assumed the address she gave me was some
sort of therapeutic center. I knew I had assumed incorrectly when I
saw the big, bright water slide rising over the treetops.
Great, I thought. Swimming and a show. See the boy scream and flap!
Be amazed at his mother’s tattoos and body hair!

Angie, who is a doll, and would never imagine that anyone would look
at Jude and not instantly fall in love, meets us at the door. She
leads us out to the pool, and introduced me to her mother and
cousins, all like Angie, perfectly tanned and coiffed and waxed and
pedicured in their bikinis. And like Angie, they are friendly and
kind, but I am uncomfortable, sweating and feeling like a zoo
exhibit. I sit on a lawn chair, and think of Beth at home, hairy legs
propped on a milk crate, watching her kids play with the hose.
I start making mental notes so I can entertain her with suburban
stories. Beth is great for that. Once we were at the park and this
yuppie lady was following her blond toddler around, calling him,
Miles Davis! Miles Davis!!

Beth and I make sideways eye contact. Louis Armstrong!! I yell to
Eden, who ignores me. Bob Marley!! She calls to Cyrus, who looks
confused. Well, Beth says, I better go check on Angela Davis. I just
saw her over by the swings, I say.

Immature, sure, but it helps us feel like maybe we aren’t getting
sucked into a soccer mom vortex. Hey, look how funny and cynical we
are! I might drive a mini van, but it is ten years old and there are
anti war stickers all over the thing. So there.

I lean over to chat with Angies mom, who I discover is the same age
as I am. And she looks better, too.

God.

Jude is in the pool with Angie, and I am watching him, going under
water, trying to float, happy as an otter, playing, splashing. I look
at Angie’s mom, and she is beaming at them, and I am not sure if she
is looking with pride and joy at my child or hers.

It is time to get out of the pool. Jude cannot handle it, and the
meltdown ensues. He is screaming like the proverbial banshee. I sit
by him. Angie does, too. If I could haul him to the car I would, but
there is no picking him up. Angie says, hey, this is fine. He’s sad.
He will get it together, and all we can do is be with him so he isn’t
all alone.

It’s just, a scene, I say.

So? Angie says. She is still looking at Jude, just the way she always
does. Like he hung the moon.

I will myself not to look around at all the faces, which I am sure
are gaping at us in horror and disapproval. Yeah, yeah, this is what
happens when freaks give birth. Go back to your Maeve Binchey novel,
you Stepford wives.

Excuse me, someone says, and I look up. Would he like a cookie?
Stepford wife is smiling, and sits down by Jude, and starts feeding
him milanos. He pauses, chews, and continues to scream. You are doing
a wonderful job, she says to me.

Someone behind me speaks. “He has such beautiful eyes.” I look up,
and everyone is looking at us. And smiling. All over the pool.
Someone pats my back.

Now I am blinking back tears.

Jude calms down, and we buy him a pop and get him in the car. I hug
Angie and tell her I have decided the burbs are not so bad.
And I hit the highway towards the city, with big, hot coals on my
head, and a Miles Davis song playing in my heart.=

Mermaids

It is beach day, and Jamie is coming with her kids. It is a special
day because John and Jamie, our friends have moved back to
Chicago from Fresno. I have missed them both with a hollow ache for
seven years. Now they are here, living in the city, and we can be
together as much as we want.

All three of my kids and Jamie’s two are yelling with excitement,
taking over the 151 as it winds down Sheridan to a little beach on
Chicago’s lakefront. Jamie and I smile at each other. It has been so
long.

Memories float back to me, of John and I laughing our heads off at
pictures of Don in 80’s spandex, Jamie and I being pregnant together,
our babies born two weeks apart.

Jamie standing in my doorway, afraid to bring in her baby because
mine was in the NICU.

Long walks down by the lake, babies in strollers, Johannes fussing
and Sage big and placid.

They moved soon after, and Lord how I cried, big and hormonal with my
second child.
Now they are back.

Johannes, like Jude, is on the autistic spectrum. He recites facts
about jazz and the civil rights movement. I think he is wonderful.
Jamie is worried he’ll yell out something inappropriate. I am worried
Jude will take his pants off. Jamie and I laugh, because we have more
in common than we ever did.

Jamie is good for a person’s ego. She listens to every story with
rapt attention, thinks I am hilarious, and has the best laugh in the
world. She is the sort of person who will watch your gory birth tape
ten times and never laugh when you hit the doctor and beg him for
Demerol.

Karin and Eden share a seat, talking and giggling. Eden is almost
four and Karin is almost six. They are about the same size, though,
Karin has Cystic Fibrosis.

I asked Jamie how she can stand it, the fear that Karin will catch
some bug, how she can let her out of the house, not just sit and rock
her and never let her go.

Jamie laughs; pointing out she could ask the same of me.

Hemophilia is different, I say. Is it? Maybe I’m just used to it.
We sit in silence, my friend and I. You don’t get used to it. You beg
God for mercy with every ounce of your being, take a deep cleansing
breath, and then you get on the bus.


The beach is wonderful, the kids are so happy, and Jamie I talk and
talk and talk. Our lives are so similiar, kids on the spectrum, kids
with genetic, well, stuff. I am acutely aware of the difference,
however. Sage and Eden have a normal life expectancy.

Jamie muses that when Eden and Karin are older, they will relate to
each other because of all the medical crap they have endured. I can’t
decide if this is a good thing, or really super depressing.

Karin asks me to take her in the water, so she won’t be scared. She
and I play mermaid, she rides on my back while I slide through the
water. She asks me after awhile, “are you tiwerd, mermaid?” No way, I
tell her, mermaids never get tired. We find a handsome prince named
Jude and ask him for a kiss, and remind him to pull up his swim trunks.

Later Karin comes running up, she has caught an insect. I open her
hand to find a hornet, and knock it away. Did it sting you? I ask.
Nope! She says, and runs off to play. I smash the hornet with my
sandal, and watch her as she skips down the beach.

When John came out to find apartments, we went out to eat, he and Don
and I. I kept having to excuse myself to go cry in the ladies’ room.
I couldn’t sit and talk about Don in pink spandex and the time John
filled Don’s combat boots with shaving cream. I could see ER’s and
needles and suffering in John’s eyes, and I couldn’t stand it.
Something changes in your soul when your child cries and just cannot
be comforted.

We are worn out and sandy and even Jude is willing to leave. Karin holds
my hand as we walk up the beach, and Sage says behind me, I knew it,
you always wanted a girl. This makes Karin and me laugh.

We are quiet on the way home, tired and lost in thought, and I am
thinking that dreams come true and then they don’t, and some things
you love go away, and drift back to you again, if you just try to be
brave and wait patiently, and dry your tears and get busy with what
you have to do. I am thinking, I wish I were a mermaid. I would carry
everyone on the water, and I would never, ever get tired.